Talk about your disease with your loved ones
Being well informed about your own disease treatment options, and access these treatments is a patient’s right but it is also a key element to become « actor » of your disease. If appropriate, you also need to be comfortable with talking and explaining your condition to relatives and friends.
Knowing how to talk to the people who support you
It is important to be daily supported and listened. However, talking about the disease with your loved ones is not always easy. Each person reacts differently when hearing about disease condition. It is therefore essential to adapt your explanation on each person’s personality. Indeed, some people will want scientific information to better understand the disease; others will rather know how to be useful.
Do not hesitate to describe your symptoms…
Sometimes, it is difficult for others to understand the difficulties generated by a chronic disease. Describing those symptoms help others to better understand ill you are suffering.
Talk about the disease with colleagues….
Getting out of the family environment and talking about the disease with work colleagues can be sensible.
Go step by step….
It is better to wait a certain time before talking about it in your professional environment. Be aware that the reactions will vary (from colleague to colleague).
How to support a loved one with a disease?
Helping someone we care for goes through different stages following the announcement of a diagnosis
The announcement of the diagnosis of a chronic disease can be a real shock for a person. It can make him/her distant, sad, and even indifferent to his/her surroundings as they seek to understand the disease and their future.
The second stage following the announcement of the diagnosis can bring upon anger. It is very important to help the person to lose all feelings of guilt.
The denial is the most difficult stage to handle, the person refusing to accept her/his disease. Forgetting medical appointments, forgetting to take drug medication: those are denial factors from the suffering person; do not interpret this behavior as bad will. Do not hesitate to help her/him by reminding her/him of her/his appointments. She/he cannot take care of herself/himself alone; her/his doctor’s role and help are crucial.
Health professionals : an essential help
Helping his/her loved one to schedule her/his medical consultations is important as long as it is not perceived as an intrusion.
Be supportive if you believe that the announcement of the diagnosis creates a too strong impact on your loved one’s psychological state. The disease awareness can foster, on the emotional plane, an excessive anxiety, even a depression.